After getting my first cyst and being diagnosed with HS, everything changed.

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Updated 11 months ago,May 29, 2024

How do you come back from your lowest point?

How do you drag yourself out of that black hole of nothingness that has consumed your life?

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For me, it wasnt easy.

My life suddenly revolved around frequent bandage changes, ruined clothing, and plenty of tears.

It seemed as if my skin disease gradually took over every aspect of my existence.

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I found myself withdrawing from everything and everyone.

I stopped wanting to get out of bed in the morning.

I stopped wanting to eat because certain foods would cause me to get even more cysts.

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I just wanted to lie in bed all day.

Without even realizing it, I slowly slipped into depression.

At my lowest point, everything felt hopeless.

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I remember waking up one day and just breaking down.

I couldnt stop the endless flow of tears.

Youre stronger than this, I told myself.

Then I washed my face, walked to my room, and started writing.

I wrote down everything that I had bottled up for so long.

I wasnt going to be held back anymore.

I wrote down every ugly word Id said in my head over the last few months.

Once I got everything down on paper, I felt so much better.

It was like a weight was actually lifted off of my shoulders.

I felt I could overcome HS no matter what.

I came to the realization that this disease would not defeat me.

My escapes are writing, reading, and listening to music.

Living with HS or any disease is definitely a struggle.

It is a burden that I didnt want, but for which Im also somewhat grateful.

Ive had to become so strong mentally, physically and spiritually.

Things that would break other people roll right off of me because Ive faced so much worse already.