Eventually, the flares also started in my armpits and getting bigger and more frequent.

Thats when I started thinking that maybe something more was happening than it just being razor bumps.

Being diagnosed was extremely difficult, Selina says.

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At 19-years-old, Selina was suffering a major flare-up, and ended up at an urgent care facility.

They didnt numb the area enough and I felt the entire horrible draining and packing process.

Never once was it suggested that she could possibly have an autoimmune disease.

They were worried about me getting Sepsis, she recalls.

If doctors dont understand, how are the patients suppose to?

Her account has thousands of followers and counting.

She helped me feel so comfortable and like I can open up about the HS in a humorous way.

Selina says shes incredibly grateful for the community shes met through the internet.

Ive spoken to men and women from around the world and its so interesting to hear their HS stories.

Theyve helped me find new products, new treatments, and ways to help my anxiety.

I will forever be appreciative for the people Ive virtually met through the internet.

People dont want to talk about it, she says.

If she could give a piece of advice to her younger self?

Its wisdom that anyone especially those struggling with the onset of HS could benefit from.